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Watching a loved one fight cancer can be very emotional, and many people do not know how to cope with loss and grief. Mesothelioma support groups can help you manage your emotional well-being as you battle cancer. These groups are a safe place to go to share your feelings, wins, and challenges with people who truly understand and care about your health.

Like with any support group, be mindful of who is running these conversations to make sure you’re receiving accurate, helpful information. Keep in mind, some of these phone number options may also have a fee involved. For information on our content creation and review process read our editorial guidelines.

The conference highlights clinical trials, treatment options, and allows the community to connect with top mesothelioma experts. Support groups allow you to meet and speak with other mesothelioma patients and survivors. Connecting with other patients dealing with similar thoughts, feelings, and emotions can help you feel less isolated during mesothelioma treatment. Mesothelioma support services can be helpful for not only patients but for family members and caregivers as well. Every advance in cancer treatment in recent years has come out of clinical trials. Our physician-scientists have been at the forefront of this research for decades to help bring our patients the best treatment options possible.

Across the United States, there are support groups and organizations that want you to feel less alone. You can connect to these foundations and support groups via the phone, in person, or even online. CancerCare provides free, professional support services for people affected by mesothelioma, as well as mesothelioma treatment information and additional resources. People may seek support for different reasons, and finding a support group can offer a wide array of benefits for anyone’s situation.

Counseling Case Management Support Groups Education Financial Assistance

Communities, advocacy groups, and support organizations for Malignant peritoneal mesothelioma. A rare disease is defined as a condition that affects fewer than 1 in 200,000 patients in the desmoplastic malignant mesothelioma United States or 1 in 2000 in Europe. I thought so, but my cousin has been diagnosed and he said it isn’t. Every month, featured experts answer your questions about coping with cancer.

mesothelioma support groups

If you’ve developed mesothelioma or other cancer due to negligent exposure to a carcinogenic substance, you could be entitled to financial compensation from the companies responsible. Fill out one of our case evaluations to see what legal resources are available to you based on your specific situation. You can also download our free mesothelioma book for more information. If you have been diagnosed with mesothelioma, you are likely entitled to financial compensation. Daily Strength provides a network of online discussion boards where users can support one another, and help other patients cope with various diagnoses. Get to know us and how we help patients diagnosed with mesothelioma.

Why Support Groups?

The Meso Foundation is a nonprofit collaboration of mesothelioma patients, doctors, researchers and advocates. The organization provides support through education and awareness pleural mesothelioma life expectancy events, funding research and more. The Meso Foundation also offers Facebook groups and telephonic support groups for patients, their family and medical professionals.

It advocates for a ban on asbestos and its members work tirelessly to help mesothelioma patients. Doctors, patients, loved ones, and advocates have created mesothelioma organizations to help others. These include the Asbestos Disease Awareness Organization and the Mesothelioma Applied Research Foundation . The Mesothelioma.com editorial team works hard to offer current, factual, expert reviewed information about mesothelioma cancer and the risks of asbestos exposure. Linda Molinari has more than 15 years of experience as a writer and advocate for mesothelioma patients and a ban on asbestos.

Global Asbestos Awareness Week This awareness event is held annually from April 1-7 and is spearheaded by the ADAO. This week is used to spread the word about the dangers of asbestos exposure and advocate for a total ban on its use. The VA provides Homemaker and Home Health Aide Care for qualifying veterans. Further, there are plenty of private in-home nursing services available for civilians. Hospice care services include the Hospice Foundation of America and the National Hospice and Palliative Care Organization.

Caregiver needs often get overlooked when patient needs are so great. Many families provide support for their sick loved ones, either out of a sense of obligation and love or to keep costs down. A caregiver is someone hired to come to a patient’s home, but it could also be a family member or friend. Caregivers provide all kinds of support, including doing chores around the house. They may also provide physical support to the patient, helping them dress, bathe, and use the bathroom. A medically-trained caregiver can also help with medicines and IV fluids.

mesothelioma support groups

They can be held at a community center, a clinic, a hospital, or even at someone’s home. Because of COVID-19, many support groups are also now being held online. The groups can be run by an organization or by group members coming together themselves. Usually, though, there is someone leading the group so that the others can focus on listening and speaking up when they feel comfortable. The leader of the group could be a facilitator, someone who has personally been affected the same way as the other members, a doctor, or a psychologist as a few examples. Here are some patient advocacy organizations that support anyone in the rare diseases community.

Anyone impacted by a cancer diagnosis such as mesothelioma can benefit from the support of others in a similar situation. Thankfully, there are several mesothelioma support group options for the whole family. The Meso mesothelioma navy Foundation has several mesothelioma-specific support groups for caregivers and loved ones. The International Symposium on Malignant Pleural Mesothelioma is a two-day conference created by the Meso Foundation.

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